The Lipedema Foundation is a private, non-fundraising foundation established in 2015 with a mission to define, diagnose, and develop treatments for Lipedema. The Foundation is the world’s largest funder of Lipedema research, with more than $11 million awarded in the US and internationally to date. The Foundation’s research focuses on collaboration, connecting patients and researchers, and fostering basic and translational research across disciplines including physiology, genomics, immunology, and endocrinology. The Foundation also maintains the Lipedema Foundation Registry, an online registry platform created to help patients, families, clinicians, and caregivers learn more about the condition, understand barriers to diagnosis, assess quality of life impact, and point the way to potential treatment approaches. The Lipedema Foundation is a dynamic start-up environment, allowing for meaningful engagement in all of the Foundation’s programs. Since the organization currently does not engage in fundraising, all responsibilities are tied directly to the mission.